Wendy’s journey with Victoria

​Latest update ..... 26th November 2018

So it's  been a while since I've posted, but now seems like an appropriate time. Praise God we are definitely in a new season. Victoria and I are currently at the School Sports Australia Track and Field Exchange (ie schools national athletics championships) in Melbourne. Victoria has won a bronze medal for the 11 year old girls multi-class discus. As you can see in these photos she is a very excited girl!

​What a journey to get here! There are many people who have helped Victoria get to this place, starting 8 years ago with all the John Hunter Children's Hospital therapists that helped her after she had a stroke during the brain surgery. We are so grateful for the time and care they put into her rehabilitation, along with many other friends and family who came to our home and helped out with blocks of intensive OT and Physio.

January 2011 - Left leg and arm splint - still smiling

March 2011 - Hydrotherapy - Still smiling

May 2011 - First AFO (Splint)

May 2011 - Constraint therapy - forcing Victoria to learn how to use her left hand again (no smiling - all concentration!)

​Since starting school at Belmont Christian College in 2012 (the year in which we found out the tumour was growing again and Victoria had to start 15 months of weekly chemo), she has been surrounded by teachers and students that have prayed for her and supported her on the 'off days'. We are grateful for her sports teacher, Mr Robins who has continually encourage her in her sporting endeavours since kindergarten. In Victoria's words, he has always challenged her to try new things in sport, taught her how to set goals and keeps reminding her not to give up.

​When we found out that Victoria had qualified at the State competition for the nationals Mr Robins arranged for Victoria to have some more technical coaching from a national age discus champion - Ash Blackstock (and her mum Emily), which was invaluable. And there was plenty of laughing too.

I can't post any of my videos from the events in Melbourne, however click here to see a video of Victoria training, practicing the tips she learnt from Ash and Emily.

We are also extremely grateful for the help of the physios and the OT that regularly work with her to ensure her muscles are doing the right things.

And of course we know that as well as all the hard work, the power of prayer is essential and we are grateful for those who pray for Victoria and those who continue to provide encouragement verbally, in messages and practically. God is building a great team around her. Thank you for coming on this journey with us - the best is yet to come.

After winning the bronze medal, and we were walking to our seats, Victoria asked me, "Are you proud of me mum?" I'm pretty sure I had said that to her at least three times, but obviously she needed to hear it again, so I said,

"Yes, I am proud of you for winning a medal, but there are also at least 6 other things I am proud of you for ...

the hard work you have put in over the years to keep your body functioning;

overcoming the fall down the stadium stairs when you hit your head on the concrete this morning;

getting through the classification process without falling apart;

not giving up when you kept throwing fouls today;

being a friend to other competitors that don't find it easy to make friends;

continually relying on God to get you through each challenge you face.

Yes I am very proud of you."

On Sunday Victoria also competed in the 11yr girls multi-class relay, for the ACT/NSW team, as the first runner. She was a little bit nervous as she had never run a relay race competitively before (they only do it at this level for multi-class). Here she is on the tram on the way to stadium trying to settle the nerves.

Again I can't post my video of the relay, but her team came fourth. When Victoria came off the track, the first thing she said to me was, 'I want to do it again!'

Unfortunately we cannot all be here to support Victoria at the this competition, but Ken and my Mum and Dad are doing a great job at home, keeping things going. Marshall, Charlotte and Alexandra are often ringing with messages of support.

The experience of coming to this competition has been wonderful for Victoria, not only from a sporting perspective, but also from a personal perspective. The NSW team has about 150 children in it, of which about 42 are multi-class children, so in this environment she is not 'different' but she is part of a large team of children who have all overcome so much physically and mentally to compete in these track and field events. The value of experience cannot be underestimated. So thank you again to everyone who over the years has helped make this possible.

And we are ever thankful to our God who has never left us or forsaken us throughout these year. He has carried us many many times, and always provided what was needed. He is faithful.

Yet amid all these things we are more than conquerors and gain a surpassing victory through Him Who loved us. Romans 8:37

And now an update on my book ... I've had a couple of copies printed to check out the layout etc before doing a larger print run ....

There are a couple of minor things that need to change and then it is complete! What a journey this project has been too.

My prayer is that this book will be a blessing to many people, not just those people who find themselves on a similar journey to us, but to anyone who is in a situation where they have no options other than to trust God - and the challenge that presents as we fluctuate from belief to unbelief and back to belief.

As I was asking God what to put in this post about the book He reminded me about the dedication page in the book ...

Just in case you can't read it in the image, it says ...

This book is dedicated to our daughter, Victoria Grace, without whom there would have been no story to write. I love you Victoria. Thank you for showing me how to live in victory despite my circumstances.

As I re-read the dedication I realised that once again over these past few weeks Victoria has shown me how to 'live in victory despite my circumstances.'

In the past couple of weeks Victoria has had some appointments that have negatively impacted her emotionally - lots of anger and tears. Then as I mentioned briefly above, here in Melbourne on the Saturday morning just before she was to go to the classification appointment she fell down the steps in the stadium and hit her head.

After being checked out by the first aid people, she slowly and carefully made her way to the classification appointment (which has previously been an experience that also resulted in a lot of negative emotion as her level of physical disability is assessed - it is a bit 'in your face'). Thankfully the classifiers were very child friendly, and there was no emotional outfall.

Then it was time for the discus competition, she was a little shakey on her feet, and after throwing a couple of fouls she looked to me standing at the fence and indicated for me to pray (as if I wasn't already praying!!!!). She knows Who gives strength in moments like these. She didn't give up, kept focused and eventually won the bronze medal.

So despite the years of heartache, pain, disappointment, fear and emotional depletion, I can see God's hand on her life, and our entire family's lives as the years go on and His purpose unfolds. And I am grateful that He has carried us through, continually building a deeper level of trust in Him - learning how to live in victory despite the circumstanced - In Jesus Name.

So if you are local and interested in purchasing a print copy of my book I am selling them (cash only) for $25 (incl GST) each, or $20 (incl GST) each if you order two or more - perhaps you might like to give one as a gift to someone who is going through a similar journey to us (there is lots of practical information in it too) or to anyone who is needing hope and inspiration to just keep going.

If you are not local, I will very soon have my website ready to accept online orders and payments. I'll let you know when this is ready, along with the availability of ebook and audio book.

Initially the profits will cover the outstanding production costs, and then a portion of the profits will go to the charities that have helped us over the years.

For anyone interested, the book covers the first three years of this journey. The table of contents is listed below ...

Table of Contents

Introduction

Chapter 1 The Diagnosis

Christmas Holidays

Reflection – The importance of a shared faith when the going gets tough

Chapter 2 Family, Fun and Fear

Waiting Days

Reflection – Distractions – there is a battle going on

Chapter 3 Post Op Recovery

Hospital and waiting days

Reflection – The Holy Spirit – our Comforter

Chapter 4 Home and Rehabilitation

Emails 8 Feb to 3 Mar 2011

Reflection – Rehab – Conquering and creativity

Chapter 5 More Therapy

Emails 14 Mar to 18 May 2011

Reflection – Creativity in therapy

Chapter 6 New Things and Events

Emails 16 Jun 2011 to 30 Jan 2012

Reflection – Camp Quality meets our needs

Chapter 7 The News We Didn’t Want

Emails 22 Feb to 18 Jun 2012

Reflection – Dealing with disappointment

Chapter 8 Chemotherapy

Emails 19 Jun to 22 Jul 2012

Reflection – The Carer needs to be cared for

Chapter 9 Wonderful Support

Emails 1 Aug to 14 Sep 2012

Reflection – Community, giving and receiving

Chapter 10 Scans and A Big Scare

Emails 1 Oct to 16 Nov 2012

Reflection – Plan B preparing for the crisis

Chapter 11 The Silly Season

Emails 26 Nov to 28 Dec 2012

Reflection – Mothers

Chapter 12 New Year and a Blog

Emails 6 Jan to 24 Jan 2013

Reflection – Writing as therapy

Chapter 13 School and Another MRI

Blog posts 31 Jan to 15 Feb 2013

Reflection – Fathers

Chapter 14 Normal Life

Blog posts 19 Feb to 29 Mar 2013

Reflection – Siblings are a blessing

Chapter 15 Living From Scan to Scan

Blog posts 9 April to 21 May 2013

Reflection – Thankfulness is key

Chapter 16 High Temperatures and Hospital Again

Blog posts 29 May to 5 Jul 2013

Reflection – Practical tips for the home of a child on chemo

Chapter 17 Precious Family Time

Blog posts 12 Jul to 26 Jul 2013

Reflection – The Bible

Chapter 18 The Wish

Blog posts 3 Aug to 9 Aug 2013

Reflection – Charities

Chapter 19 Reality Hits Fast

Blog posts 11 Aug to 19 Sep 2013

Reflections – Keeping the left leg working

Chapter 20 Living from a Place of Victory

Blog posts 27 Sept to 29 Oct 2013

Final Reflection – Three years of learning

Epilogue

Acknowledgements

About Wendy Robinson

Appendix A Scriptures

Appendix B Victoria’s Medical Diagnoses

Appendix C Occupational Therapy Activities

Appendix D One Hour Occupational Therapy Plan

Appendix E Master List of Lists

Appendix F Emergency Hospital Bag Contents Checklist

Appendix G Homecoming Checklist

Appendix H School Booklet

Appendix I Signs for Displaying at Home

Appendix J Home Medical Kit

Appendix K Charities that have helped our family

Appendix L Maintaining and Improving Leg Function

Notes

My sense is that there is a second book to write, and the story is only just beginning!

Anyway, that is more than enough information for now! Thank you so much for staying the distance with us. Please continue to pray for Victoria as she approaches the teenage years and the challenges they can bring. I am going to finish this long post (sorry that it is so long - but there was so much good news to share!) with one of my favourite scriptures ...

But me, I'm not giving up. I'm sticking around to see what GOD will do. I'm waiting for God to make things right. I'm counting on God to listen to me. Micah 7:7 The Message

I pray that God will bless you and your family and give you the strength to overcome and live in victory, In Jesus Name, Amen.

>